The moment the doctor said “there is an abnormality on the MRI” my world stopped for a split second. He started to turn around and was pointing to the back of his neck. I stopped him and said “wait, did you say abnormality?” The next words out of his mouth were “there is a demyelination on the c spine, which is indicative of MS but not conclusive.” My next words were strong and harsh. It’s indicative but not conclusive? So why would you say that to me? Why would you put that worry in my head if it’s not a firm diagnosis? What are our next steps?
It was 10pm, I had been in the emergency room for 12 hours. I had barely had anything to eat. I had been hooked up to an IV that was painful and had to sit in horribly hard chairs in the yellow area waiting room of North York hospital. The chairs made my symptoms worse and I just wanted my bed. But let me back up to the beginning of what is called an “episode”.